Major Disappointment

Ok,
So after much talking and thinking and questioning we decided to do serial casting on Kylie's legs to stretch her ligaments and get better alignment on her feet so she could fit properly into her AFO's (foot braces).  8 weeks.  8 weeks of her screaming and kicking us, resulting in bruising on me and David when she would kick us with those fiberglass weapons.  8 weeks of her screaming for hours and hours and hours.  There were countless numbers of sleepless nights, getting the cast wet in the bath and sitting for hours with a hairdryer blowing down her leg to dry it out.  She developed a sore on her right ankle that is horrendous.  We have spent the last 2 weeks changing the dressing on that foot and watching the terror in her eyes as we come near it.  We have gone through a couple of bottles of Tylenol trying to manage her pain.  To put it mildly the last two months have sucked.

Yesterday I took her to the surgeon.  He removed the cast and looked at her wound on the other foot.  The he said, "she's not progressing--no change."  My heart sank.  The only other option is surgery, which wouldn't happen until January at the earliest, so her feet will completely revert back by then.  We will regain the stretch from the surgery, but it is only a temporary fix lasting hopefully 3 years.  Post surgery will mean 6 more weeks of casts.  After the pain and expense of surgery will she even take advantage of it and stand and take some steps...she has very little drive in that area...Or do we stop trying, stop therapy and buy the wheel chair...Eight weeks of torture for her and us, for absolutely nothing...I hate this.  We don't know what to do, and I am sad...